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Severe Chronic Neutropenia International Registry (SCNIR)

Creator:

Severe Chronic Neutropenia International Registry

Subject Keywords: Neutropenia register
Set: Chronic Conditions
Rare Disease
Rare Diseases
Conditions
Catalogue: Data
Primary Data Sources
Type: Database
Region: Republic of Ireland
Europe
International (other)
Description:

Neutropenia is a blood disorder, in which the number of neutrophils (white blood cells) in the blood is too low.

The Severe Chronic Neutropenia International Registry (SCNIR) was established in 1994 to monitor the clinical course, treatment, and disease outcomes in patients with severe chronic neutropenia (SCN). In 2000, the registry became a foundation with headquarters at the University of Washington, Seattle, USA, and at the Medical School Hannover, Germany.

The European branch of the SCNIR is actively cooperating with paediatricians and haematologists all over Europe. A database system enables all centers participating in the SCNIR to get most pertinent information on severe chronic neutropenia.

The SCNIR collects both, general and specific clinical information, e.g. on malignant transformation, bone marrow transplantation and outcome etc., on patients with severe chronic neutropenia.

In Ireland, the National Paediatric Oncology/Haematology centre is based at Our Lady's Hospital for Sick Children where all patients with Haemophilia and Related Coagulations disorders can attend.

Date:

01/01/2012

Rights: © Severe Chronic Neutropenia International Registry
Suggested citation:

Severe Chronic Neutropenia International Registry. (2012) Severe Chronic Neutropenia International Registry (SCNIR) [Online]. Available from: http://www.thehealthwell.info/node/113371 [Accessed: 20th November 2017].

  

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