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Report on the Newborn Screening Card Archive Forum

Creator:

Department of Health (Ireland)

Subject Keywords: Screening
Topic: Chronic Conditions
Conditions
Cancer
Chronic Conditions
Catalogue: Research and Evaluation
Report
Type: Report
Region: Republic of Ireland
Description:

NSC Report Cover

The Department of Health hosted the Newborn Screening Card Archive Forum on 27 October 2016, with the aim of providing participants from a broad range of areas with the opportunity to engage in deliberative dialogue with international experts regarding the current and future retention and secondary uses of the Newborn Screening Card Archive. The retention of Newborn Screening Cards collected indefinitely prior to 30 June 2011 without consent is unlawful.

The Report on the Newborn Screening Card Archive Forum is a record of the proceedings and sets out the key issues and themes including views from the international speakers and the participants. The Department will take into consideration the themes raised in the Forumâ?Ts Report as part of their deliberations to seal the data protection breach.

Report on the Newborn Screening Card Archive Forum

Report Appendices nos. 1 – 3

Report Appendix no. 4

Report Appendices nos. 5 – 6

Date:

31/01/2017

DOI:

10.14655/11971-1152099

Rights: Department of Health (Ireland)
Suggested citation:

Department of Health (Ireland). (2017) Report on the Newborn Screening Card Archive Forum [Online]. Available from: http://publichealthwell.ie/node/1152099 [Accessed: 22nd September 2019].

  

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Contributor:

Department of Health (Ireland)
 
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