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National Hepatitis C Database


Health Protection Surveillance Centre

Subject Keywords: National Hepatitis C Database
Topic: Chronic Conditions
Rare Disease
Rare Diseases
Chronic Conditions
Catalogue: Data
Primary Data Sources
Type: Database
Region: Republic of Ireland

Hepatitis C infection is a major cause of liver disease and it is estimated that up to 20% of people with chronic infection will develop cirrhosis over a 20 to 25 year period.  Approximately 1,700 people in Ireland became infected with hepatitis C virus (HCV) through contaminated blood and blood products. The National Hepatitis C Database was established to gather information on people infected in this way.

The database was developed in 2004. Follow-up data on the cohort is collected annually. Eligible patients can consent at any stage The third round of data collection was carried out in 2008-2009. Almost 76% of eligible patients, comprising those who consented and those who have died, are now included in the database.

The database is managed locally by hepatology units and nationally by the Health Protection Surveillance Centre (HPSC), and is monitored nationally by the National Hepatitis C Database Steering Committee, on behalf of the Consultative Council on Hepatitis C.

Information collected includes:

  • Age
  • Sex
  • How person became infected
  • Medical condition
  • Results of tests
  • Treatments received



Rights: © Health Protection Surveillance Centre
Suggested citation:

Health Protection Surveillance Centre. (2012) National Hepatitis C Database [Online]. Available from: [Accessed: 16th October 2019].


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