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National Haemophilia Register


National Centre for Hereditary Coagulation Disorders (NCHCD)

Subject Keywords: National Haemophilia Register
Topic: Chronic Conditions
Rare Disease
Rare Diseases
Chronic Conditions
Catalogue: Data
Primary Data Sources
Type: Database
Region: Republic of Ireland

TheNational Haemophilis Register, is a national register for all patients with haemophilia and related bleeding and clotting disorders. Interfaced to St. James's Hospital Patient Administration System/Laboratory Information System; Networked to Our Lady's Children's Hospital, Crumlin and Cork University Hospital, Cork via Citrix Virtual Private Network.

Data is collected at the point of care and retrospectively. Data collected includes: demographics, diagnosis, allergies, test results, medical and nursing notes, prescriptions, care providers.



Rights: © National Centre for Hereditary Coagulation Disorders (NCHCD)
Suggested citation:

National Centre for Hereditary Coagulation Disorders (NCHCD). (2012) National Haemophilia Register [Online]. Available from: [Accessed: 23rd February 2019].


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