This page can be referred to using the following tiny url: http://tinyurl.com/cd4bcep
National Motor Neurone Disease Clinic, Beaumont Hospital
|Subject Keywords:||Motor Neurone Disease Register|
Primary Data Sources
Republic of Ireland
The Irish Register of Motor Neurone Disease (MND) includes all known patients diagnosed with MND each year. It dates back to 1994 and it now has clinical information from over 1,400 patients. The register is maintained at the National MND Clinic at Beaumont Hospital.
The Register is one of the largest and most complete in the world and was made possible by support from the IMNDA.
A DNA bank was added in 1998 which contains samples from over 300 patients. The Register must be constantly updated, and if possible, to continue to include everybody in Ireland with MND. Although no personal details are uploaded on the register because all of the information is coded in advance, some personal details are needed in order to verify the age, the date of onset and the type of MND. Data collected includes date of birth, date of onset and type of MND, clinical features, progression, survival, presence of associated features including cognitive decline.
|Rights:||© National Motor Neurone Disease Clinic|
National Motor Neurone Disease Clinic, Beaumont Hospital. (2012) Irish Motor Neurone Disease Register [Online]. Available from: http://www.thehealthwell.info/node/15863 [Accessed: 24th March 2017].
Altmetrics are currently not available for this resource.