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Irish Epilepsy and Pregnancy Register

Creator:

Beaumont Hospital Epilepsy Research Group & Royal College of Surgeons in Ireland (RSCI)

Subject Keywords: DRUG, EPILEPSY, PREGNANCY
Set: Chronic Conditions
Rare Disease
Rare Diseases
Conditions
Catalogue: Data
Primary Data Sources
Type: Database
Region: Republic of Ireland
Description:

The Irish Epilepsy and Pregnancy Register was set up in 2001 for pregnant women with epilepsy in Ireland. The aim of this Register is to find out which type of epilepsy drugs women are taking while pregnant and to collect information on the health of their babies after delivery.

Since 2007 the Irish Register has formally joined up with the United Kingdom (UK) Epilepsy and Pregnancy Register (which was established in 1996 for pregnant women with epilepsy in the UK). Anonymised information from both Registers are joined regularly.

The Register obtains and publishes information on the frequency of major malformations such as heart defects, spina bifida and cleft palate among infants whose mothers take one or more anti-epileptic drugs to prevent seizures. Women with epilepsy who become pregnant, whether or not they are taking anti-epileptic drugs for their epilepsy are eligible to register their pregnancy.

Details collected includes maternal information (Date of birth, expected delivery date), medical history, epilepsy history (seizure types, Anti-epileptic drug (AED) Treatment), folic acid details, GP details, whether smoker or not, if attending a specialist clinic for epilepsy.

Date:

01/01/2012

Rights: © The Irish Epilepsy and Pregnancy Register
Suggested citation:

Beaumont Hospital Epilepsy Research Group & Royal College of Surgeons in Ireland (RSCI). (2012) Irish Epilepsy and Pregnancy Register [Online]. Available from: http://www.thehealthwell.info/node/15862 [Accessed: 20th November 2017].

  

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