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European Organisation for Rare Diseases (EURORDIS)

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http://www.eurordis.org/

Creator:	European Organisation for Rare Diseases (EURORDIS)
Subject Keywords:	Rare diseases
Set:	Chronic Conditions Conditions Rare Disease Rare Diseases
Type:	Website
Region:	Europe
Description:	EURORDIS is a non-governmental patient-driven alliance of patient organisations and individuals active in the field of rare diseases, dedicated to improving the quality of life of all people living with rare diseases in Europe.
Date:	03/04/2012
Rights:	© EURORDIS
Suggested citation:	European Organisation for Rare Diseases (EURORDIS). (2012) European Organisation for Rare Diseases (EURORDIS) [Online]. Available from: http://www.thehealthwell.info/node/115905 [Accessed: 17th October 2018]. View your saved citations and reading lists
Contributor:	Other partner websites Click here to view all the resources gathered from this organisation's website.

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26 September 2018

View the presentations from IPH’s Childhood Obesity Symposium

‘Tackling childhood obesity: the economic and ethical imperatives’ was held in Belfast on 24 September 2018.

The aim of the event was to present recent findings about the lifetime costs of childhood obesity in Northern Ireland and the marketing of food to children in a digital world. It provided a platform to discuss the implications for tackling childhood obesity in Northern Ireland.

To view the presentations from the event, click here

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7 September 2018

Northern Ireland’s Health and Social Care Collective Leadership Strategy was launched in October 2017

The Strategy seeks to create a health and social care leadership community in which all take responsibility for nurturing cultures of high quality, continually improving, compassionate care and support.

The Department of Health in Northern Ireland is seeking your views in developing a core set of values and associated behaviours for Health and Social Care.

The questionnaire can be accessed here and is open until 28 September 2018

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29 August 2018

Fit to Fly report recommends action to reduce alcohol-related harm occurring in airports and aeroplanes

A new report by the Institute of Alcohol Studies (IAS) and the European Alcohol Policy Alliance (EUROCARE) has made recommendations to address alcohol-related harm occurring in airports and aeroplanes. The report recommended:

Better licensing regimes in airports, including, in the UK, the application of the Licensing Act so that premises after security are required to follow the same legislation as premises in the rest of the country
Alcohol consumption at airports to be restricted to bars and restaurants, with alcohol bought at duty-free put in sealed containers and picked up by passengers at the gate or put directly into the hold of the aircraft.
Empowerment of local police forces at landing airports through the application of the Montreal Protocol.

The report can be found here

Institute of Alcohol Studies (IAS)

European Alcohol Policy Alliance (EUROCARE)

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27 August 2018

IPH would like to invite you to its upcoming Obesity Symposium

‘Tackling childhood obesity: the economic and ethical imperatives’ will be held in the Clayton Hotel Belfast on 24 September at 10.30am.

The aim of the event is:

To present recent findings about the lifetime costs of childhood obesity in Northern Ireland and the marketing of food to children in a digital world
To discuss the implications for tackling childhood obesity in Northern Ireland

For more details and to register for the event, click here

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24 August 2018

International Healthy Cities Conference to be held in Belfast in 1-4 October 2018

Thousands of cities worldwide are part of the Healthy Cities movement. Healthy Cities is a global movement working to put health high on the social, economic and political agenda of city governments.

This Conference, which takes place every 5 years, offers the chance for cities to engage with their international counterparts and benefit from the Network’s experience. The 4-day programme in Belfast will be packed with opportunities to learn from the work of healthy cities globally, bringing together politicians and key decision-makers from within cities, as well as technical experts.

To find out more, click here

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20 August 2018

UK National Screening Committee (NSC) recommends that bowel cancer screening in England should start 10 years earlier at age 50.

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16 August 2018

August edition of the All-Island Obesity Forum News

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14 August 2018

DoH publishes its 10-year Sláintecare Implementation StrategySláintecare is the Irish government’s reformation of Ireland’s health and social care system. The strategy proposes a fundamental shift, vision and strategic plan for the future direction of the Irish health and social care services.The Implementation Strategy, launched late last week, sets out a ten year plan for reform with wide ranging recommendations covering five key areas:

Population Health Profiling
Entitlements and Access
Integrated Care
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Implementation.

You can download the implementation strategy here

For more information, click here

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8 August 2018

HSE and Donegal hosting a ‘Having a say in Mental Health Services’ Coffee Morning in Letterkenny

The HSE in collaboration with The Donegal Local Forum are hosting a local mental health engagement event on Monday 13th August. This will be in the form of a coffee morning and information session.

The aim is to promote Mental Health Engagement and its collaborative work through the local forum with people with experience of using mental health services and those who support them. The HSE wish to invite all with an interest in Mental Health, including, service users, family members, carers supporters and staff.

It will take place at Motley Crow, Anti-café, Railway House, Ramelton Road, Letterkenny on Monday 13th August (11am to 1pm).

For Further details, Click here

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8 August 2018

Next Mojo South Dublin programme starts on Wednesday 12 September

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The course is aimed at men aged 18+ who are having issues with employment, are having difficulties with their mental health and are in distress.

The Mojo Program contains psycho education on mental health issues, mindfulness, personal development, support with identifying and accessing a large range of progression routes, social opportunities and a fitness plan with tasters of local fitness activities.