menu ☰
menu ˟

Rare Disease

Title Added Edit View
Report of the Consultation for a National Rare Disease Plan for Ireland 27 Jul 2014 edit view
National Centre for Medical Genetics 5 Year Report 2007 - 2011 13 Mar 2013 edit view
UK Renal Registry Reports (1998 - 2009) 04 Apr 2012 edit view
Rare Disease Day 03 Apr 2012 edit view
European Organisation for Rare Diseases (EURORDIS) 03 Apr 2012 edit view
Orphanet 28 Mar 2012 edit view
Genetic and Rare Disorders Organisation (GRDO) 28 Mar 2012 edit view
Health Protection Surveillance Centre 28 Mar 2012 edit view
RARECARE 28 Mar 2012 edit view
Northern Ireland Newborn Screening Programme Database 21 Mar 2012 edit view
Northern Ireland Newborn Hearing Screening Programme Database 21 Mar 2012 edit view
National Pulmonary Hypertension Unit Database 21 Mar 2012 edit view
UK Renal Registry (UKRR) 20 Mar 2012 edit view
UK Epilepsy and Pregnancy Register 20 Mar 2012 edit view
UK Cystic Fibrosis Registry 20 Mar 2012 edit view
The National Haemophilia Database 20 Mar 2012 edit view
Severe Chronic Neutropenia International Registry (SCNIR) 20 Mar 2012 edit view
CRANE Database 20 Mar 2012 edit view
National Centre for Medical Genetics (NCMG) 14 Mar 2012 edit view
National Newborn Bloodspot Screening Register 13 Mar 2012 edit view
Irish Heart & Lung Transplant Programme Database 13 Mar 2012 edit view
Health Service Executive Newborn Hearing Screening Programme 13 Mar 2012 edit view
National Centre for Inherited Metabolic Disorders 13 Mar 2012 edit view
European Surveillance of Congenital Anomalies (EUROCAT) 10 Sep 2010 edit view
National Renal Transplant Registry 09 Sep 2010 edit view